I know that no one probably cares but I really don't have anyone to talk to other than friends I have never personally known on the internet.
I have lost my mom to cancer a few days ago. She was diagnosed two years ago with stage 4 colorectal cancer with mets to liver.
After going through 16 cycles of chemo her liver mets only became more thus considered unresectable. So My dear mom opted for stopping chemo which was almost a year ago. After that i started researching to help her. I had zero background in medical field as i am just an artist so it took me months to understand cancer a bit. at first it was just a couple of supplements I would come across on online testimonials, but after a while I was introduced to some people who were investigating Oncology either for a loved one or for themselves at a much serious and deeper level, they helped me figure it out a little and understand the mechanisms through which the drugs they were using worked.
while learning the only thing that i was brave enough to ask my mom doing was a diet known as the budwig diet. I never expected it to work really ( I now know that it actually has a firm science behind it) but i gave it a shot anyways based on anecdotal reports. Surprisingly it really worked and my mom became stable for a few months. The diet was restrict so my mom kinda left it after a few months. That was when i started her on some medicines recently being repurposed in Oncology like Metformin, Mebendazole, Cimetidine, etc. I knew these couldn't be enough my mom's cancer was a KRAS mutation which is known to be problematic and less likely to respond to treatments. now I was looking into a new class of recently emerging drugs which target Cancer cell's metabolism known as Glycolysis inhibitors i.e Methylglyoxal, Sodium Dichloroacetate, 3bromopyruvate, 2doxyglucose,etc..all being experimental drugs but of course cancer patients can not wait for clinical trials so they either self administrate or go to some German or Mexican clinics where patients are allowed to choose their treatment. i chose one and went to another country to get it from the researchers who were working on it to be sure of the quality and proper formulation and being in Iran and under sanctions I had lots of problem to deliver the money (or buy even a simple supplement from Amazon)to another country since we couldn't use Swift nor we are allowed to have a credit card to use online..anyways the whole process took lots of time like 2 months which for a cancer patient is a very big deal. I could've chosen other medicines which were more accessible to me but I chose the one which were more promising and had a great track record of 78 response rate and almost 40 percent complete remission.
unfortunately for me by the time I was back my mom had gone through an unnecessary operation without being told by her doctor that she'd go through a general anesthesia. my mom was on lots of medication and the risk of such operation for her was very high especially since the doctor also had never asked about the meds she was taking and indeed it hit us hard. my dear mom's condition worsened shortly after that. she also had to stop all her meds because some of them had mild anti angiogenesis properties and could also be hard on a liver with compromised function. well the stoppage, let the cancer grow.
she developed Ascites and Edema and things got out of my hands completely as I had my own doubts and fears since I was not a medical doctor after all. as a result my mom lost her trust in all the meds she was taking and stopped all the treatment altogether and I couldn't convince her to get back on them since I was doubtful myself. it became harder and harder for me to take risks. my dad also never believed in anything i was doing and never gave me the courage I needed to use other medicines I had at home so most of the drugs I had gathered with lots of trouble remained unused. still I could have bought other more effective things for such a day but I never expected it to go like this. having an unorganized artistic mind was a huge barrier for me in this road all along and I couldn't manage many things together alone. while my mom's condition was getting worse everyday I used various things but the stress was so high I never managed to choose a single path and have faith in what I was doing.
now from what I've written so far one might think that I'm not to blame that much and my mom's case was a given up on case anyways but this is not true. I personally know many stage 4 terminal cases who are surviving doing various versions of what we were doing. but my planning always was so terrible everything was always late. whatever I tried to do would go through terrible unnecessary complications which could've been avoided if I had planned better. I also strongly believe that if my mom had not stopped her treatments she was with me today. but I couldn't convince her. looking back at how things went I can not say that for sure that if I had begged her she wouldn't resume them. maybe she would. but I was always angry at some of her reactions instead of helping her have a winner mentality. this is where I needed family support but I never had it, still I should've done it myself no matter how hard it was for me to cope with the stress.
I also was never a fan of self administrating drugs specially for a complex disease like Cancer. I asked my mom many times to seek treatments somewhere else and do everything we do and more under the care of a professional (we were working with a doctor from another country but I mean some one who my mom could visit and contact personally) but she had always refused. again looking back at it I wonder if I had begged her maybe I could change her mind.
now that she's gone I'm completely devastated. I have nothing to live anymore. I was already clinically depressed when she was diagnosed but when it all happened I told my self that if I can win this fight..just this fight I could be happy once again. everything could workout again and I promised myself that I have now learned my lesson and now know how valuable life is. I just wanted this from the whole world and now all the dream I worked hard for is gone. before my mom passed away I thought even if couldn't win this fight I probably would find some comfort in helping other patients as I knew many things that could help given up on cases and bring them back science based hope. but now I honestly can not care less. I just want to be with my mother and beg her for forgiveness that I didn't make better and smarter decisions.
I also hate my family since they never offered any help especially my dad who not only has cheated on my mom in the past and while she was fighting with cancer but he also never backed me up during this whole struggle.
so I really don't care how it affects others if I decide to stop living and join my mom as seeing her is the only desire left in me.
sorry about the messy post and also I understand if tl;dr but I couldn't possibly make a shorter version as I already cut many relevant details. I'm not even sure why I post it here but I needed to share with someone cause the pain is just beyond me at this point.
pouya.
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