Some survivors of the disease:

http://www.ichthyosis.org.uk/families.aspx

http://bklyn-eurotrash.livejournal.com/183969.html

This poor baby was born with a deformity that is unbelievable and very sad. The disease is called Harlequin fetus syndrome. I was pretty shocked when I saw it. Kinda makes you appreciate what you have.

http://view.break.com/286282